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Biograf
journal for qualitative research

ISSN 1211-5770
Registration code MK ČR: E 8364
Published by the civil association Casopis Biograf
Krompach 26, 47157
casopis@biograf.org
ICO: 27003213
Two issues per year.
Editor-in-chief: Barbora Spalová (editor@biograf.org)

Text detail

Biograf 2017/65

On (in)coherence of caring: Multiple ontologies of life with dementia

Michal Synek; Dana Hradcová; Dita Jahodová; Radek Carboch

On (in)coherence of caring: Multiple ontologies of life with dementia

Atolls of our coral reef inhabited by people living with dementia are linked up by partial connections, by hesitant assumptions, which on some of the atolls are almost unconditionally relevant, while on others hold true only partially, and still on others are not valid at all. There isn't single dementia, single coral bleaching, nor single solution to these problems. All-encompassing unities – as syndrome of dementia or bleaching – are visible only when observing from nowhere, be it from the vantage point of Medicine or Oceanography. From the viewpoint of a single being, concrete community or centre of coherence they have only limited value. And yet, the individual versions of living with dementia are interconnected one with the other in such a way that it entitles us – under certain circumstances and in a certain sense – to talk about unity. Reality is „more than one – but less than many“ (Mol 2002: 55; Law 2004: 59, 62, 74, 160). In the field of STS, researchers call this ontological nature of reality multiplicity. Our attempt at capturing multiplicity of living with dementia indicates that different patterns of coherence linked by partial connection do not have to be commensurable – they do not have to map onto a single Euclidean space. Our-self, casuistic, town and translation were drawn up by different researchers, in different sites and with different partners. We believe that acknowledging ontological specificity and idiosyncratic dignity of multiple partial patterns of living with dementia gives some hope – if not for cure, then at least for better living and dying in the times of trouble.

Keywords:

Dementia, care, multiplicity, partial connections, coherence.

Biograf themes:

Body and embodiment; Medicine and health; Actor-network theory; Ethical and legal aspects of research; Social work and social policy

Citation:

SYNEK, M. / HRADCOVÁ, D. / JAHODOVÁ, D. / CARBOCH, R. (2017): O (ne)soudržnosti pečování: Mnohočetné ontologie života s demencí [On (in)coherence of caring: Multiple ontologies of life with dementia]. Biograf, (65-66): 144 paragraphes. Avalaible at http://www.biograf.org/clanek.html?id=1017 [last access22. 11. 2019]

Acknowledgement:

Text vznikl s podporou grantu č. 15-32942A-P09 AZV Ministerstva zdravotnictví České republiky Case management jako komplexní intervence u pacientů s demencí, její vliv na užití zdrojů a kvalitu života pacientů a pečujících. Rádi bychom poděkovali za cenné komentáře Olze Šmídové-Matoušové, Janě Lindbloom, Zdeňku Konopáskovi, Kateřině Nedbálkové a Terezii Lokšové, jakož i recenzentkám a recenzentům Biografu. Majce Němcové děkujeme za výzkumné pobyty v odloučení na evangelické faře v Borové u Poličky. Náš dík patří rovněž, a především všem těm, kdo byli ochotni povídat si s námi o (svém) životě s demencí. Bez jejich velkorysosti a otevřenosti by tento text nevznikl.

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